Claire Wineland Cystic fibrosis activist dies at 21
Image copyright Claire Wineland/Instagram
A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant.

Claire Wineland, 21, became renowned for her posts about illness and mortality on social media.

Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards.

Her foundation said she had died peacefully, surrounded by family.

In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed."

Ms Wineland rose to fame through her use of social media and speeches to convey a positive yet realistic message around issues such as her illness and her mortality. Skip Instagram post by claire.wineland The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in “that” way. It took having a fair amount of relationships and casual sex before I realized that I wasn’t the empty smiling shell of a girl I saw reflected back in pictures. It’s so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply don’t understand the truth of their condition because they are living up in the clouds. Seeing people who are sick as anything more complex and intelligent than that would mean we couldn’t use them as these false beacons of hope. I’ve struggled more with guys, depression drugs, family and career than I ever have with my illness. I’m not an innocent and I’m not a child. I’m not “dying before I have had a chance to live” and what I choose to talk about with the world is not just empty positive falsehoods. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT Report End of Instagram post by claire.wineland Image Copyright claire.wineland claire.wineland Report

At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness.

"Life isn't just about being happy... It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said.

Ms Wineland was a supporter of radical Senator Bernie Sanders and she once fled hospital to attend one of his rallies.

The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. Skip Twitter post by @BernieSanders I would like to acknowledge Claire Wineland who passed away last night. You are an inspiration and brought joy to many. You’ll be missed deeply. pic.twitter.com/BsTEFmquR7— Bernie Sanders (@BernieSanders) September 4, 2018 Report End of Twitter post by @BernieSanders

In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Skip Instagram post 2 by claire.wineland @larissaperoux We some cheese balls just cheesing it up. 🧀 So grateful for everything this month. I’m grateful for all the people who donated to help me get through transplant. I’m grateful for the doctors that’ll be scooping out these lungs and giving me some more life to work with. Im grateful for the chance to keep being a person. I’m grateful for my own head and for all the weird things in it. I’m just really overwhelmingly grateful for all of this. There is no passionate rant to be had here I am just happy and thought I would let you all know. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT Report End of Instagram post 2 by claire.wineland Image Copyright claire.wineland claire.wineland Report

The Claire's Place Foundation said her organs were being made available for transplant.

"Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in Northern California," her mother Melissa Yeager told CNN.

Cystic fibrosis is a genetic lung disease with no cure. The progressive disease creates too much mucus, trapping infections in the body and blocking the airways in the lungs.

The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. You may also be interested in: Six attempts to make toys more inclusive 'I don't want to bury my daughter' Cystic fibrosis drug cost 'should be lowered' Related TopicsCystic fibrosisDisabilityInstagram

Source: https://www.bbc.co.uk/news/world-us-canada-45405637



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